Saturday, September 27, 2025

And now back to our regularly scheduled programming....

Things remain unchanged with Brian. He is continuing to experience serious pain. The pain makes it hard for him to swallow, and he remains on a liquid diet. He is continuing to receive hydration therapy through his port. He is continuing PT of his neck, face, and mouth. At this point it's just a waiting game, which isn't fun to play.

~Lucy 

Taking a break from Brian's medical news....

You guys!! I forgot to tell you! The clinical trial I took part in last spring (2024) unblinded the groups. I was indeed on Paxlovid for the full 25 days. Which explains how very, very awful I felt. I am feeling so much better now, but am still waiting on the report to be published. Unfortunately, the RECOVER study is funded by the NIH and the grant money is in flux. So the report has been delayed as staffing, etc gets juggled. I am really hoping to see if other people have improved the way I have.

Unfortunately, my time with the study comes to a close October 25th. They are hoping to continue data collection under a new grant, but at this time they are winding down the main operation. For long Covid sufferers, it is a real blow. 

~Lucy